Brisbane Trail Ultra™ Charity Support
Brisbane Trail Ultra™ - QFES - RFS
Athlete safety is what drives our team at the Brisbane Trail Ultra™. We have partnered with Queensland Fire State Emergency Services, Rural Fire Services (RFS) for the Brisbane Trail Ultra. The RFS is instrumental in helping our team provide a safe trail running experience for our athletes on the course. The Brisbane Trail Ultra™ donates $10 of every entry directly to the Brisbane Rural Fire Services Team’s QFES has an annual Regional Challenge fundraising for the Children’s Hospital Foundation with all the monies raised going to the purchase of ECMO machines. Each machine is $132,000.
In 2019 the Brisbane Trail Ultra™ raised over $5700 from entries and online donations that goes directly to the QFES Regional Challenge for the Children’s Hospital Foundation. Our fundraising target for 2020 is $7500.
Brisbane Trail Ultra™ - Sanfilippo Children’s Foundation
IN 2019 the Brisbane Trail Ultra™ was part of the SFSuper series and helped raise over $20,000 directly to the Sanfilippo Children’s Foundation.
What is Sanfilippo Syndrome?
Sanfilippo is a rare genetic condition that causes fatal brain damage. It is a type of childhood dementia and most patients never reach adulthood. But there is hope. Researchers around the world are working hard to find effective treatments.
A rare metabolic disorder
Sanfilippo, or MPSIII, is considered a rare disease: 1 in 70,000 children are born with the inherited condition. The exact prevalence is not known, but it is estimated that there are between 75 and 100 children living with Sanfilippo in Australia.
Sanfilippo is a metabolic disorder which means there is a problem with one of the chemical reactions that naturally occurs in the body. It is caused by a lack of an enzyme that normally breaks down and recycles a large sugar molecule called 'heparan sulphate'.
The disease has four subtypes (A, B, C and D). Each subtype corresponds to a lack of a different enzyme, each one responsible for a different step of breaking down heparan sulphate.
Michelle Morrice one of the Brisbane Trail Ultra race ambassadors is a mother of a child who has this fatal disease. She is raising funds on the Hope for Alec Fundraising page
In 2019 she ran the Brisbane Trail Ultra 30km to raise funds and awareness to help save her son from this fatal disease.